Matteo's mother (affected by Ondine Syndrome)
"It is necessary that faith-based organizations and religions are sensitive to the issue of children palliative care, not only in act of passing "judgment" but by understanding and recognizing the suffering, difficulties and exhaustion of these children and families. It is essential that the leaders of the religious communities are trained and prepared not only religiously but also humanely to cope competently with these situations so that they themselves can be a true source of help and a positive presence for families who are facing the loss a child, a relative or loved one."