Francesco Ostellari

Patient, affected by muscular dystrophy

"As a catholic I would like to understand why there is death. I would like to understand why there is pain when you have not caused it or others have caused it. I do not want to hear answers like, "The Lord is putting you to the test." If God is love and wants the good of his creations/children, I cannot understand why, if he loves them, he puts them to the test by harming them, especially by giving them an incurable illness. I think the first thing that should be conveyed by religions is the acceptance of the person as they are, without pity, without thinking: "this is a disabled person, now I’ll do a good deed." As I understand from the Gospel, even if a child is ill or has some intellectual difficulties, he/she is first and foremost a person and a son/daughter of God"


I will do all within my power so that every child with a life limiting or a life-threatening illness has access to paediatric palliative care.

Paediatric Palliative Care is the best approach for all children and young people suffering from a life-threatening and/or life-limiting disease.

Collectively, we have the opportunity and awareness to advocate for child-specific palliative care and for its provision as an integral part of the health care system of every country and relieve the suffering of so many more vulnerable children with life-threatening and life-limiting illness.